Monday, January 14, 2013

Day 3

By the time I get to the end of the day and try to think back to morning I can't remember what was today or the day before. Everything is beginning to run together, and the days are so long it's hard to believe this morning happened today instead of a week ago. Fortunately the nurses are so pleasant and friendly that one begins to look forward to their comings and goings. For us these comings and goings are virtually constant.

Tessa spent most of this morning in agony because of her mouth. The ulcers on her cheeks and under her tongue look like huge canker sores and cover most of the surfaces in her mouth. Her throat is in a lot of pain, so I imagine they are present in there as well. She can no longer eat anything because of her mouth pain, not even popsicles. The flavors make everything sting. The only thing she is ingesting at this point is water and ice chips. She occasionally licks the pink lollypops we get from the Trader Joe's "treasure chest", they are the only thing that doesn't hurt. Because of how much pain she's been in they increased her morphine dose twice today. She is now getting a pretty hefty dose, but is feeling better.

It's comic to think that there was a time I thought I would be reading or crocheting while Tessa lay in bed sleeping the days away. Not even close. Casey and I are wearing holes in the chair next to her potty and a path between our room and the kitchen. She is still spending hours on the potty, literally. I am constantly running to the freezer to get ice for her drinking water or shaved ice for her to eat. I can't believe how fast she goes through it all, but enough that I'm walking miles a day just traveling the 40 feet from here to the kitchen and back. That's pretty much all we are doing all day. Telling the nurse she needs more meds, getting ice, sitting with her while she's on the potty, or trying to soothe her in some way.

Anywho...hopefully the increase in meds will make tomorrow easier.


Tessa gets an xray every Monday. One of the nice things about being in-patient is that they will bring the equipment to you. Say cheese Tessa!

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