Today Tessa got a visit from a couple of the men in her life: Poppie and Uncle Mattie. There was lots of coloring and crafting (it's refreshing to see so many men decorating pink crafts!). I got out for a long walk; much needed after my mini-meltdown.
Tessa got to play princess to her room full of princes.
Tessa had a great day discomfort wise. The docs went down slightly on her dilauded dose and took her off of two of the antibiotics she's been on in response to her rising counts. Her rash is getting better, and she's feeling pretty good all things considered. She still isn't eating much because her mouth is "hot". I think this is Tessa speak for her sores are still hurting. She did manage to enjoy a See's chocolate lollipop though! Yummy!
Thank you to everyone for your support and love in the wake of my "full-disclosure" blog. Feels good to get that stuff out, but it does give me pause when I think about all the people who are reading this and witnessing our lives. Oh well, I'm grateful for the willingness of people to share in our story even if it means they get to witness all our messiness.
Love to all.
Wooooohoooooo!!! Go neutraphils, whatever that is!! So great to hear that she's feeling better... And Sar, seriously, your honestly and full disclosure is some of the most powerful reading out there. Your story is impacting lives in ways I think none of us will ever realize, in a positive way. And that's because of who you are being in the situation, not because of the situation. Thank you for your honestly and the courage to be real with us all.
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your sis
Jennifer is right! Love the pictures, especially all the men and the princess dolls. Do whatever you need to, to hang onto your sanity! Much love :)
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