Saturday, October 6, 2012

Are we having fun yet?

No new news medically speaking. We packed a bag and headed to Carmel to see my folks for a couple days as our next doctor's appointment isn't until Monday. Friday Tessa was a little out of sorts, but we decided to take her to the Monterey Bay Aquarium and play it by ear. It wasn't too terribly successful, Tessa was super hungry a la steroids most of the time, and was pretty grumpy. But she did get a kick out of the jellyfish and the shark exhibit. That evening I went out to visit with some old friends. It was wonderful hanging out and reconnecting with a very important woman in my life (love you Meena!), her husband Paul (dad extraordinaire) and their adorable daughter Jenna. When I got home that night (or rather early morning), I was met with Tessa and Casey wide awake. Tessa's pain had returned in the wake of the lower steroid dose, and she was whimpering in pain. It was a very rough night and morning involving a lot of morphine and comforting from Casey and myself (carrying her to the bathroom, fetching her every need, etc.). After talking with the doctor we hammered her with her original steroid dose all at once and added Tylenol to the mix (which increases the efficacy of the morphine). We managed to get the worst of the pain under control by this afternoon, but she's wiped out (as are we) and already in bed.

We're headed back to Los Altos tomorrow, and back to the doctor on Monday. Praying for some relief for Tessa, and some answers and direction. Love to all.

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