Day 223

Yesterday was a long day. That morning I got up at 5 and got all of our stuff ready for the trip north, whipped out the blog and took a shower all before Tessa was awake. When she woke up and remembered that we were headed back to the hospital she asked for a laundry basket and to be covered with all the blankets so that she would be safe. Poor kid.

Tessa in her Safe Spot

Tessa and I drove up to the hospital, Casey followed us in a separate car (he gets his weekend away this weekend). As is par for the course when you are at the hospital everything took forever. It was 2.5 hours before they even got the IV in. The IVIG infusion took about 3 hours, and then an extra half hour to fill her up with extra fluids (she was a little dehydrated). Casey was awesome and took Tessa wandering around the halls while I took a (very) short nap. Tessa walked her "kitty" which was made out of the board they were going to strap to her arm to keep it from bending, but her sad little face convinced the nurses not to.

Tessa and daddy walking "kitty"

The good news is that Tessa was not admitted. She even gets to go down on some of her meds! We just have to keep a close eye on her (cuz I'm not constantly hovering over her and watching every move she makes now :/). We left the hospital last night at 7 and Tessa and I drove to my parents house in Carmel. We are both wiped out. I slept until 11:30 today (yes!!!!), and she passed out on the couch this morning and is still dreaming peacefully.

Socked out on  Nana's couch

Thank you all so much for your prayers, they obviously worked and kept us out of the hospital! It means so much to our family that we have such a supportive network of friends and family. We are grateful to you all.

I will try and do a better job of keeping everyone informed of Tessa's adventure! I promise promise (as Tessa would say).

Also want to get the word out about something wonderful that Casey is doing. Being so affected by Tessa's experience, we both want to be able to give back in some way and Casey has found something that is right up his alley. He is participating in a fundraising bike ride called the Canary Challenge to raise money for cancer research. If you are interested in reading a bit about his experience and motivation for participating, or if you would like to make a donation please visit his link here:

http://canary.convio.net/site/TR/Events/General?px=1018531&pg=personal&fr_id=1060

Thanks for taking the time to check this out. If it wasn't for all or the research and work being done in this field, our family would be in a very different place.

Love and prayers to you and your families!